So I am desperate for help and emailed my GI doctor and he actually got back to me very quickly.  I am impressed and thankful.   He is going to see about getting me back into the Stelara Trial.  At this point I can tell that I desperately need something other than just not eating and relying on pain pills to get me through this Disease.  So, I will take any help I can get.   Even though I have a sour taste from the care I have gotten in the past at the clinic, the Trial Nurse is a wonderful individual and very caring and I know she would do anything she could to help me.  So I feel there is some hope and will grab at anything that might help me.