Tuesday, February 21, 2012
Spent all day yesterday at the Clinic. Basically did every test that I had done before when I tried to join the Trial. I am having misgivings. Not sure exactly why. But after a full day of everything I need to take back a bowel sample and then will find out if I can join this first phase Trial. If so, then I would have an appointment set for an infusion or injection of the drug or a placebo. I won't know which. Then at week 3, 6 and 8 I would have more tests to go and have done and then if I get relief from either the Placebo or Drug I can then go through the whole process again to see if I qualify for the Maintenance Trial. At which time I would receive the placebo or drug depending on what was originally given me. I have misgivings. This is a lot to go through to may or may not feel better. Yesterday was over the top too much for me. I came home and went to bed and got up at 10 a.m. Today I have been a pill popping maniac just to get through the pain. I had to go do something for work and could barely stand up. The doctor that saw me was kind and gentle and felt bad that I was so miserable. She also noticed my Lupus was flaring awful, I had that wonderful butterfly rash across my face and broken out in many other areas. If I had the money I would just go buy Cimzia to try and get some instant relief. But since I don't and can't I will continue on this route for the hope of some possible free medication. I really felt like a guinea pig, being poked and prodded and your Trial Nurse doesn't really want to connect with you, just go through the motions. Even though he really was kind and efficient. I hate to complain as I am lucky to have this close by to go and try but I still have misgivings. I suppose if I didn't something would be wrong.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment