The last couple of days have been pure hell for me.  When you have to brace yourself while in the bathroom just to get through the pain and even then you pray to god to help you get through it, you know something is terribly wrong.  My lupus has been flaring at the same time.  My joints turned bright red and it literally hurt to sit down or stand up.  Along with dealing with devastating migraines it has all been a bit much.  Mostly I have been in bed just trying to get through the days.  I was up all night with Crohn's and just didn't sleep but today I feel better than I have in about a week, so I will take it.  I realize that I will be ready for bed at noon but hey that's okay.  I am learning that naps may be a part of my life for a while.  I am learning how to use these pain patches, you would think it's pretty simple but really it's not.  I was having chest pains and I'm pretty sure it was from taking scorching hot baths that cause the medication to release in a bunch.  Not only is that hard on your system but you end up without the medication needed.  Also, my last patch got a little wet by being sat down on the counter and water can ruin the patch.  There are certain areas that are better than others to place the patch and I am playing with this each time I put on a new one.

It has been so long since I have blogged, almost forgot how to do it.  Just when I was at the very end of my rope my doctor has stepped up to the plate to help me.  I am on a new pain medication, a patch.  This is very new to me, I am about a week out in taking this.  While I find great relief from my pain and fatigue while on this patch my migraines seemed to have kicked in full force.  The weather here has gone from 70 degrees one day to snowing the next and I am hoping this is the reason for the increase in my migraines.  They literally put me to bed eyes closed waiting for it to pass or for myself to fall asleep through the hell.  On the upper note, seeing some relief after literally living in my bed leaves me with a bit of hope. Just about when I thought all hope was lost.