Thursday, July 25, 2013

My Crohn's Disease is back.  Slept through pain all night and finally gave in early this morning to get through it.  I feel very tired and know this is the cause of fatigue that is hard to overcome.  But I had a few weeks reprieve from it and that's the most I have had in so many years.  I feel horrible if you can say that, I realize grabbing the wall and crying to get through a restroom trip isn't normal but it's what I have to deal with.  My cyst is hurting in my jaw and I think it may be growing, not sure what if anything I am going to be able to do about it.  My labs finally came back after almost two months of waiting on the results and my liver is still damaged, inflammation markers are quite high and I still have Latent TB.  Really it's much of the same.  Disappointing that my Crohn's Disease is back.

Sunday, July 14, 2013

I have experienced joint pain, crohn's, migraines, psoriasis and the list goes on but this new problem is really something else.  My teeth are hurting like crazy, shooting pain through my face like a knife.  It is sporadic with some teeth and has sat on some others.  Just all of a sudden.  Lupus can cause inflammation in the nerves and others go and have gone through this.  Do I pull all of my teeth and get dentures?  Doesn't exactly sound appealing yet I cannot eat because of this and or sleep.  Do I go to the dentist and have him start working on every tooth?   My right side of my face is swollen even though I have iced and applied heat.   I will have to go in and talk to the dentist about all this as something will have to be done.  My life feels like a cruel joke at the moment.

Saturday, July 13, 2013

So the inflammation in my nerves in my mouth is causing me crazy ass pain.  Literally, I can't eat and have to lye with a heating pad just to tolerate it.  Some people have all their teeth pulled as they can't stand it and I can understand doing that.  It feels as if pulling every tooth would relieve the pain.  I guess this is a common Lupus symptom.  Imagine having a whole head of toothache pain, it's odd pain too.  It radiates up the nerves into your cheeks and down into your jaw.  I survived last night without going to the ER and I will keep hanging in there but it's getting hard.  God help others who have to go through this too.  This is no way to live.

Thursday, July 11, 2013

A very new symptom which is really bothering me.  It seems the nerves in my jaw are inflamed from Lupus and it feels like very dang tooth in my head needs to be pulled out.  Literally a whole head of aching teeth.  It is fairly common and many people choose to have their teeth pulled to find relief from the aching others go through extensive dental work.  What really needs to be done is some anti inflammatory treatment, unfortunately my liver isn't well enough to handle that nor my Crohn's.  I feel like somewhere someone has created a voodoo doll of me and decides what cruel joke to play.  I know it could be worse but toothache in every dam tooth makes me feel like my head could pop off.  I am on my pain patches which is supposedly 100 times stronger than morophine, I wonder how much worse it would be without them.  It's all about inflammation and it overtaking my immune system.

Saturday, July 6, 2013

Another grueling event.

I literally thought I was going to die last night.  The pain was so bad I didn't know how I was going to survive.  All week I have been a bit sick and I kept saying I felt off.  Well, now I know why I felt that way.  I had a blockage and starting passing bowel and throwing up tons at the same time and the pain was so bad I couldn't stand it.  This went on for quite a while till finally the blockage passed and the pain and vomiting subsided.  What a damm grueling event to go through.  This all while my sweet daughter is here visiting.  I spent most of the time in bed and now my daughter is going back home.  But I am so thankful to have survived this and feeling exhausted but better today.  I slept part of the night in the tub with my puppy dog.   He just jumped in and cuddled next to me, what a sweetheart.