Friday, August 30, 2013

Wow, what a week for me.  I have been so, so, sick.  I slept 16 hours last night and had to be woken up.  The hepatitis is making very tired, dizzy, nauseated and generally in poor health, which sounds funny to say.  I have no appetite and it's like having the flu.  Along with very sore joints from Lupus and my Crohn's not playing fairly and on top of all this I have to slowly wean myself off of my pain patch, which will be months to battle as it is very addicting.  Things are always so bad for me that when something else happens it's really makes me feel down for the count.  Just feeling broken and sick and tired of being sick and tired.  Like I haven't said that before.

Sunday, August 25, 2013

Living daily with Crohns Disease: Truly am so sick that if I think about it I could ...

Living daily with Crohns Disease: Truly am so sick that if I think about it I could ...: Truly am so sick that if I think about it I could just cry all the time.  Crohn's pain and trips most of the night and on top of that I ...
Truly am so sick that if I think about it I could just cry all the time.  Crohn's pain and trips most of the night and on top of that I have excruciating joint pain.  It hurts to step or walk on my feet.  My shoulders hurt, knees hurt, calves, hips and just about everything.  It's impossible to sleep and all I can try to do is take my mind off of it.   On top of this, I feel a migraine coming on.  I still feel determined to eat well no matter what.  Anything I can do to maybe make a difference is worth a try.  But I feel dreadful.  Monday I will get my results concerning my liver and whether I can continue on the pain patch or not.  All I can do is just no one else has to go through this and try and keep a good attitude although today it is painfully hard.

Thursday, August 8, 2013

My joints don't hurt they are on fire with pain.  I can barely move to sitting position in bed and force myself up from a sitting position but cry out in pain.  I force myself to keep walking but it's almost null as I have become so very slow.  Its not just a little ache this is almost a point of feeling like my joints are locked and the pain radiates up and down my legs and across my shoulder and into my hands.  I worry that it is becoming very debilitating.  Currently I am flaring with fissures that feel like a knife is being poked into my bottom and it doesn't seem to be getting better.  It is frightening to be this sick, I don't understand why I am getting worse instead of better.  I am thankful for a few weeks reprieve but it's back with a vengeance.  I am eating well, as well as I can considering.  I had a banana for breakfast yesterday, juiced (carrots, spinach, kale and an apple for lunch.  Dinner was an apple and organic peanut butter.  Everyday I fall asleep mid afternoon,so I am getting plenty of rest even though it doesn't feel restful.  Today I started liquid glucosamine as anything is worth a try and I will try anything just to feel relief.