Friday, July 29, 2011

Living Daily With Crohns Disease

Crohn's seems to have no feelings as to when it decides to strike.  During a nice conversation on the phone with my daughter this morning, she said, "mom are you on the toilet"? Yes, unfortunately I was.  Didn't want to end my conversation early.  It would be nice to say you get used to it, but how do you get used to constant pain.  That seems to be the worst.  You can handle constant bowel movements, not nice maybe, but still manageable to some degree, but the pain isn't so much.   It's hard to plan to go and do anything as your body doesn't always agree.  There are just so many times that you can back out and people stop understanding.  There is a high degree of anxiousness in doing everyday things.  When crohn's symptoms strike, there isn't time to complete the task your at, in line at the grocery store, at a stop light, the list goes on.  Nothing, nodda that you can do about it.  This might be the reason that crohn's patients begin to isolate theirself.  A self preservation technique or just sheer need either way it makes life a bit easier. When you are under the weather or not feeling well, nothing is better than being home. 

1 comment:

  1. You find yourself not making plans because the likelihood of being able to actually go probably won't happen. It is isolating, however, there are a few good forums out there where you can meet others that have the same disease. However, the crohn's forum is over populated, it's incredible how many people are facing the same odds.

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