The theme with Crohns Disease seems to be the pain.  It doesn't seem to be addressed enough with Medical Professionals.  Even when you read about Crohns Disease it isn't mentioned that the pain would be constant and almost unbearable.  This is my second night in a row that I have been unable to sleep due to the pain.  Last night I managed to get a few hours of sleep starting at 3 a.m.  Looks like tonight will be more of the same.  It is exhausting to deal with so much pain and takes a toll on your health in other ways as well.  For me, it is a symptom that is as bad as the bowel issues.   I suspect if more of these professionals actually had the disease their take on it would be completely different.