The pain today is over the top, horrendous!  It literally hurts to sit, stand or walk.  My lupus is flaring and I just generally feel ill.  I slept in and out through pain and finally gave in and got up and sat in the restroom most of the morning.  People just don't understand what it's like to live with this.  It is just no fun at all and it just seems to progressively get worse instead of better.  I was disappointed to be denied the Drug Trial to replace your immune system.  As drastic as it seems, I would clutch at anything at this point to feel better.