Friday, May 25, 2012

My daughter called last night and I had just taken a pain pill and it was kicking in.  I was able to have a nice phone call with her.  Many times during phone conversations my bowels start kicking in and I have to end the call abruptly.  Same if I try to go out somewhere and get in line at a store, then the panic sets in.  People don't understand what we really have to deal with.  This disease has a terrible timing in our lives and it's stressful to be out and  and about and all you can think about is, am I going to make it.  So much so that I really prefer staying home and I'm sure many of you do to.

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